
News flash: "On the October 2, 2008 evening broadcast of WSLS Channel 10 News of Roanoke, Virginia, Karen McNew, a news anchor and reporter for the "Health on Your Side" segment, interviewed Cinda Crawford about how to feel better and get well from Fibromyalgia and Chronic Fatigue Syndrome. Get the television clip and story at this link."
(Also click on the link below for the 9 min, audio podcast)
This is vitally important to the cause of people with Fibromyalgia and Chronic Fatigue Syndrome. Please read all the way through to the end and then send in your comments. The real story is more than the minutes that made it on air.
When Ms. McNew visited my home for the interview, I shared many, many facts, figures and things I had learned in my 20-year battle with Fibromyalgia (FMS) and Chronic Fatigue Syndrome (CFS).
(Note: if you view a pdf version of this article rather than read through this post now, Click Here.
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I told Karen about:
- the prevalence of the 2 illnesses in society and how people really suffer
- how and when I contracted the illnesses,
- how bad my symptoms were and about the book I'm writing on my experience, From the Floor... Looking up, and
- a few things that I used to help me feel better, like vitamins, supplements and integrative medicine techniques such as chiropractic, acupuncture and massage.
Finally, we talked about my current passion, putting together information and resources for the Health Matters Show, a blog and podcast on these dreaded illnesses, and the work I do for individuals to help them feel better. It's called the ELT Protocol.
"I told Karen specifically that ELT is the energy healing mechanism that I chose to get me well... no ifs, ands or buts about it. I am convinced that getting the ELT Protocol helped my health turn the corner and head towards home."
My experience was that "ELT" was the very most important component of my healing journey, not an afterthought or an addendum that was hinted at in the broadcast as "energy medicine." I am convinced that I wouldn't be where I am today without having undergone this original, powerful and incredible work!
(As a matter of fact, I was so impressed with the ELT Protocol that I became a certified practitioner and now offer my services to help other people feel better and allow their bodies to heal themselves. I love this exciting work!)
WSLS chose to hint at the mechanism of my recovery and then offer a brief description of my work on the Health Matters Show, plus short clips about the importance vitamins, Magnesium and Calcium, sleep control, and stress reduction. That is okay. I understand the television industry's objective of traveling the "middle of the road" on such an issue.
And, although I think that what Ms. McNew said is important (regarding how to live with and manage Fibromyalgia and Chronic Fatigue Syndrome), I did not even hint that her suggestions were the keys to the kingdom. She chose her message.
I appreciate what Karen McNew and WSLS have broadcasted. But in my opinion, the television segment left out more information than it offered. The reason behind such abrupt coverage is partially due to the nature of television with its sound bites and short clips to hold viewer interest. A few seconds here, a few seconds there.
However, each of the elements that I talked about with Karen played a role in helping me live through 15 years of agony and bone-numbing fatigue, and finally come out on the other side a changed and healthy woman. The smaller components were not enough to turn my health around. I can only tell you what worked for me.
Choosing to receive the ELT Protocol was my path to wellness. It proved to be effective in getting me well. I'm now 5 years into recovery.
Dear reader and listener... you must choose your personal path to regain what you lost. At the very least, your health and quality of life are at stake. Often we walk different paths to get to the same place. What's important is you finding one that works for you."
I encourage you to check out the television news segment currently highlighted on WSLS's website.
When you do, take both of the following actions:
(Note: both of these "to dos" are important. Contacting the media and expressing your opinion makes the difference as to whether they keep covering FMS and CFS as an important health story-or- whether they stop!)
- First, write to Karen McNew. Or email her and express your concerns about the information you need to get well from Fibromyalgia and Chronic Fatigue Syndrome. Tell her how important it is for her to air more segments about these illnesses. It's vital that the news people hear from us if we want more news and media coverage! If you like what she did, tell her. If you would have liked her to cover the subject differently, tell her that, too. Your email is something you control. Use this medium to express your thoughts and needs and why such coverage is absolutely necessary to educate the public. Also, you can post a comment directly on the WSLS webpage where the segment is located. They would love it and that works, too.
- Second, comment to my post right here on the Health Matters Show blog. Other people will see what you write and hear the concerns of your heart. The Comment section is located at the bottom of this post. Send me your thoughts before you forget to do it! I really want to hear from you. If my work at the Health Matters Show and Get Well Health is to be effective, I need your input. Please post.
Here's hoping that you get all of the information and help that you desire from the medical profession, the news media and this resource known as, the Health Matters Show, which is designed exclusively around your needs.
Thank you,
Cinda Crawford, your host



































Comments (3)
Please keep getting messages out there about C.F.S./M.E/Fibromyalgia! It's so important! The discrimination we face by people, even well intentioned people, is so distressing!
I'm doing my best to make these illnesses which are usually labelled "invisible", visible!
I have just started a www.flickr.com group page which is designed to attract visual artists to make "visible" these invisible illnesses!
This group is only a day old but I encourage you to stay tuned to this page and watch it evolve and grow. I hope it will teach people to see M.E./C.F.S and even Fibromyalgia in sufferers!
The link is http://www.flickr.com/groups/me_is_visible
When you look at a room full of people with C.F.S./M.E. and Fibromyalgia you CAN see the illness. It's in their eyes, their body language, their souls! It's in the way they talk and communicate, it's in the way they hold themselves or even "slouch". These visible aspects of the disease can often be misread by teachers as laziness, or friends as disinterested...causing discrimination and isolation.
C.F.S./M.E. REALLY IS VISIBLE! It's time to help others to see!
Posted by Jo Kamasz | October 6, 2008 5:49 AM
Posted on October 6, 2008 05:49
Thank you for your reply and the good work that you're doing. I highly encourage everyone to go this referenced site and sign up. People need to value the hard work that's being done in this community. It is valuable almost beyond words!
Congrats, Cinda
Posted by Cinda Crawford
|
October 6, 2008 9:20 AM
Posted on October 6, 2008 09:20
Hi Cinda,
Well done! What great coverage. Thank you for getting the message out to spread awareness, for people who have the 2 illnesses and for those who may not know they have them. You are helping so many. I look forward to reading your book when it comes out!
Congratulations,
Alexandra Carmichael
Co-Founder, CureTogether
Posted by Alexandra Carmichael | October 7, 2008 4:45 PM
Posted on October 7, 2008 16:45